Chapter 6 118 Table 4. Topics patients (n=266) selected to discuss during consultations with help of a question prompt list. Topic Total population n=266 Diseasemodifying phase Symptommanagement phase n % % (n=118) % (n=148) P-value† Category 1: Symptoms/problems 250 94.0 94.1 93.9 0.96 Pain 159 59.8 51.7 66.2 0.017 Dry mouth 78 29.3 24.6 32.9 0.13 Loss of appetite 147 55.3 55.1 55.4 0.96 Constipation 69 25.9 23.7 27.7 0.46 Nausea 66 24.8 18.6 29.7 0.039 Shortness of breath 74 27.8 20.3 33.8 0.016 Fatigue 181 68.0 68.6 67.6 0.85 Anxiety 96 36.1 39.0 33.8 0.38 Depression 88 33.1 37.3 29.7 0.19 Nutrition 82 30.8 33.1 29.1 0.48 Sexuality and intimacy 13 4.9 10.2 0.7 0.007 Category 2: Future 188 70.7 73.7 68.2 0.77 Expected future symptoms 179 67.3 70.3 64.9 0.35 Treatment options for future symptoms 181 68.0 70.3 66.2 0.47 Category 3: Medication and treatment 215 80.8 81.4 80.4 0.85 Side effects of medication 80 30.1 29.7 30.4 0.90 Medication intake times 46 17.3 19.5 15.5 0.40 Next steps regarding medication 51 19.2 13.6 23.6 0.040 M edication for when I suddenly have more symptoms 99 37.2 33.1 40.1 0.21 Types of morphine-like medication 120 45.1 38.1 50.7 0.042 C hoice between treatment/no treatment of the disease 105 39.5 42.4 37.2 0.39 Choice between treatment and quality of life 138 51.9 60.2 45.3 0.016 Category 4: Social/meaning 138 51.9 58.5 46.6 0.06 Support or information for my children 73 27.4 31.4 24.3 0.20 S upport or information for the people around me 100 37.6 39.0 36.5 0.68 Meaning/philosophy of life 47 17.7 18.6 16.9 0.71 Category 5: Organisation of care 210 78.9 73.7 83.1 0.06 Home care 151 56.8 50.0 62.2 0.047 Domestic care 103 38.7 36.4 40.5 0.50 Hospice care 64 24.1 14.4 31.8 0.001 Volunteers 37 13.9 10.2 16.9 0.12 Point of contact for symptoms 122 45.9 44.1 47.3 0.60 Role of the general practitioner 129 48.5 48.3 48.6 0.96 Possibilities of care 125 47.0 47.5 46.6 0.89
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