Mary Joanne Verhoef

Chapter 6 128 SUPPLEMENTARY MATERIALS Supplement 1 Question prompt list of the Leiden Guide on Palliative Care 2015. OVERVIEW OF POSSIBLE CONVERSATION TOPICS AND QUESTIONS Center of Expertise in Palliative Care During the consultation I want to talk about: Symptoms /problems ☐ Pain ☐ Constipation (problems with bowel movement) ☐ Shortness of breath ☐ Nausea ☐ Loss of appetite ☐ Fatigue ☐ Dry mouth ☐ Nutrition ☐ Anxiety ☐ Depression ☐ Sexuality and intimacy Future ☐ Expected future symptoms ☐ Treatment options for future symptoms Medication and treatment ☐ Side effects of medication ☐ Medication intake times ☐ Next steps regarding medication ☐ Medication for when I suddenly have more symptoms ☐ Types of morphine-like medication ☐ Choice between treatment/no treatment of the disease ☐ Choice between treatment and quality of life Social/ Meaning ☐ Support or information for my children ☐ S upport or information for the people around me (informal caregivers) ☐ Meaning of life / philosophy of life Organisation of care ☐ Home care ☐ Domestic care ☐ Hospice care ☐ Volunteers ☐ P oint of contact for symptoms (who do I call for what) ☐ Role of the GP ☐ Possibilities of care Last phase of life ☐ Palliative sedation ☐ Euthanasia ☐ Food and fluids ☐ Practical matters relating to end of life ☐ Course of last phase of life My personal questions ☐ ………………………………….. ☐ ………………………………….. ☐ …………………………………..

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