Chapter 7 148 Table 1. Characteristics of interviewees and of patients whose consultations were audiotaped (continued) Audiotaped consultations Patients who used a QPL: n=25b Age, median (range) 67 (46-80) Sex, male, n (%) 15 (60) Patient primary disease diagnosis, n (%) Oncological 24 (96) Kidney failure 1 (4) Median survival, months (IQ-range) 6 (3-51) Median duration of interviews with patients, family and patient/family advocates was 17 minutes (range: 4-39; the shortest interview was stopped because the patient was called for diagnostic imaging). Median duration of interviews with clinicians was 30 minutes (range: 18-57). Median duration of 25 consultations was 53 minutes (range 38-78). a The primary disease diagnosis of one patient was missing b In total, 32 consultations were recorded; 7 patients had not used the QPL. The median duration of 32 consultations was 53 minutes (range 35-78). Table 2. Topics from the question prompt list that patients (n=25) selected and that were addressed during their consultation with palliative care consultants. Topic Selected in the QPL Addressed during the consultation Selected and addressed Initiator of topic Patient or family Palliative care consultant % n % n % n % n % n Category: Complaints or problems 92 23 100 25 100 23 88 22 100 25 Pain 64 16 92 23 100 16 30 7 70 16 Constipation 20 5 76 19 100 5 16 3 84 16 Shortness of breath 28 7 44 11 86 7 27 3 73 8 Nausea 24 6 56 14 83 6 50 7 50 7 Less appetite 40 10 76 19 90 10 37 7 63 12 Fatigue 48 12 88 22 83 12 36 8 64 14 Dry mouth 24 6 60 15 100 6 13 2 87 13 Nutrition 20 5 76 19 100 5 63 12 37 7 Anxiety 28 7 68 17 86 7 35 6 65 11 Depression 28 7 56 14 100 7 29 4 71 10 Sexuality and intimacy 0 0 0 0 N/A N/A N/A N/A N/A N/A Category: Future 64 16 68 17 81 16 29 5 77 13 Complaints expected for the future 56 14 60 15 79 14 33 5 67 10 Possibilities for managing future complaints 52 13 32 8 39 13 13 1 88 7 Category: Medication and treatment 76 19 96 24 95 19 63 15 96 23
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