Chapter 7 170 Supplement 5 Practical use Usefulness Prerequisites Prerequisites - Right timing (depending on readiness; topics that are previously discussed; timely provision of QPL; setting (out or inpatient clinic)) - Patient emotionally identifies himself as being in the palliative phase - QPL’s appearance makes a good first impression - Sufficient time, energy and space to fill out the QPL - Patient or family needs to be able to cognitively understand the QPL Usefulness - The QPL creates overviews of: - Content and scope of palliative care - Own thoughts and wishes - Topics that can be discussed during a consultation - Things to expect in the future By providing these overviews, it supports setting an agenda for the consultation. - The QPL supports making decisions - The QPL initiates a reality check and acceptation of the situation - The QPL lowers the threshold to: - Ask question - Discuss topics with family Content Content - All topics were considered relevant, even if the topics do not apply to the individual using the QPL - Some topics were considered emotionally challenging, but participants just skipped these topics - Inspired to think about topics participants would not think about Usefulness - Preparation - Patients and family filled out the QPL a couple of days (within one week) before the consultation - It took them around 30 minutes to fill it out - They mostly went through the whole QPL at once - They enjoyed filling it out together with family - They liked the option to tick boxes for selecting topics to discuss during the consultation - During consultation - Patients and family used the QPL to take notes - They felt the QPL gave them the opportunity to ask directed questions - They felt the topics they selected were discussed and concretised - After consultation - Some patients and family took the QPL to home to discuss with their general practitioner - The QPL was used as a reminder of topics that were discussed or could become actual later Supplement 5a. Code tree of the evaluation of the question prompt list among patients and family.
RkJQdWJsaXNoZXIy MTk4NDMw