Non-specialist palliative care - question prompt list preparation 171 Supplement 5b. Code tree of the evaluation of the question prompt list among clinicians. Factors related to informing patient and loved ones Factors related to clinician’s work Factors related to the consultation QPL helps to discuss unknown (future) scenarios ↓ - Makes patients and loved ones think and makes them aware of topics that may be difficult to discuss - Creates order and clarity for them by providing them an overview of palliative care discussion topics - Makes it easier to ask questions and not forget questions they want to ask ↓ More peace and less anxiety in patients ↓ Supports decision-making ↓ More empowered patients and loved ones QPL provides overview of what palliative care entails ↓ Patients, loved ones and clinicians are prepared for the consultation ↓ - Better possible to discuss topics more in-depth - Less miscommunication because the QPL not only includes topics related to the terminal phase Content is in line with current practice: - These are (often) raised - These are relevant The QPL could support clinicians as a checklist of what can or should be discussed - Can be used by clinicians during the consultation as a guide - the list is considered not too long, although they think it is not feasible to discuss all topics in one consultation The QPL can be used by clinicians as a tool to get an impression of where the patient stands - May provide a list of their worries and problems - May give an indication of if and how a patient takes an active role Barriers for use and value - The QPL may not be suited for every patient in the palliative phase - The QPL is too long to discuss in one consultation - Unsure which clinician should discuss the QPL and in which setting Possible solutions - The patient is not obliged to use the QPL - More than one consultation can be scheduled to discuss the QPL - Ask the patient what he or she considers the most important topic to discuss - Refer to another clinician or healthcare professional when topics are outside the field of expertise of the QPL or in case time is lacking: nurse specialist, psychologist, social worker, spiritual counsellor 7
RkJQdWJsaXNoZXIy MTk4NDMw