Non-specialist palliative care - question prompt list preparation 179 Supplement 7 LEIDEN GUIDE ON PALLIATIVE CARE: Guide for clinicians Instrument can be requested by e-mailing with palliatievezorg@lumc.nl What is the Leiden Palliative Care Conversation Tool? The Leiden Guide on Palliative Care (LGP) is a list of possible topics and questions that can support patients and/or their loved ones in preparing for a conversation about palliative care and end-of-life decisions. It can help them formulate the questions they want to discuss. The topics and questions of the LGP were chosen together with patients and their loved ones. The LGP consists of: 1. An Utrecht Symptom Diary 4-Dimensional (USD-4D) to indicate symptom burden and quality of life; 2. A list of topics and questions on themes within palliative care about: a. Physical complaints b. Medications c. Treatments d. Personal aspects e. Social aspects f. Future g. Organization of care h. Last stage of life i. Questions from loved ones or informal caregivers Space has also been left open for patients and family to add their own questions. Who is the target population for the LGP? • The LGP is intended for any patient in the palliative phase and his/her loved ones. • If the LGP cannot be completed by the patient and loved ones together (e.g., because the patient is too tired, has cognitive problems, or is low-literate), a loved one can complete the LGP. 7
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