215 Appendices Portfolio Name PhD student: Mohamed El Sayed PhD period: June 2018-July 2023 Names of PhD supervisor & co-supervisor: Prof. dr. C.E.M. Hollak and Dr. M. Langeveld Year ECTS Courses, seminars and masterclasses Clinical Epidemiology 1: RCT, Graduate School, Amsterdam UMC, AMC 2018 0.6 eCRF development in OpenClinica 2018 0.6 e-BROK, Graduate School, Amsterdam UMC, AMC 2019 1.0 Computing in R, Graduate School, Amsterdam UMC, AMC 2020 0.4 Writing a Scientific Article, Graduate School, Amsterdam UMC, AMC 2020 1.5 Observational Epidemiology: Effects and Effectiveness, Graduate School, Amsterdam UMC, AMC 2021 0.6 Didactical skills, Graduate School, Amsterdam UMC, AMC 2021 0.4 Weekly research meeting, dept of inherited metabolic diseases, AMC 2018-2022 4.0 Presentations The MODIFY study- annual meeting of the Fabry Support and Information Group, The Netherlands, Almere 2018 0.5 Cardiac events in Fabry disease- annual meeting of the Fabry Support and Information Group, The Netherlands, Almere 2019 0.5 Cardiac events in Fabry disease- symposium of the Dutch and Belgian Inherited metabolic disease Group, The Netherlands Utrecht 2019 0.5 Cardiac events in Fabry disease- symposium of the Society for the Study of Inborn Errors of Metabolism, The Netherlands, Rotterdam 2019 1.25 The role of cardiopulmonary exercise testing in Fabry disease (FEISTY) proposal- annual meeting of the Fabry Support and Information Group, The Netherlands, Almere 2021 0.5 The Fabry electro and echocardiography study-annual meeting of the Fabry Support and Information Group, The Netherlands, Almere 2022 0.5 Two posters, The Fabry electro and echocardiography study- symposium of the Society for the Study of Inborn Errors of Metabolism, Freiburg, Germany 2022 1.0 Two posters, The Fabry electro and echocardiography study- annual international Fabry meeting, Würzburg, Germany 2022 1.75 (Inter)national conferences Symposium of the Dutch and Belgian Inherited metabolic disease Group, The Netherlands Utrecht 2018 0.25 Annual international Fabry meeting, Prague, Czech Republic 2019 0.75 A
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