Gender Aware PD Care 155 6 Lastly, with two single item question, participants were asked to respond to the following questions and statement: “Do you have previous experience with the topic of gender sensitive medicine for men and women with PD, or have you thought about this topic prior to this workshop?” (Yes/No) and “I think it is important that there be more differentiation between men and women in PD research and care.” (1 = Strongly disagree, 5 = Strongly agree). Focus Group Discussions During the morning program of the design sessions, we conducted focus group discussions (FGDs) using a standardised semi-structured interview guide with openended questions. On the first workshop day, we conducted 2 simultaneous FGDs with men with PD and on the second workshop day 2 FGDs with women with PD on the second day. Participants numbers were split equally and allocated to a focus group based on their GSC scores, with one focus group consisting of participants with lower GSC scores and one focus group with higher GSC scores. The objective of the interviews was to explore and identify gender norms or stereotypes that impact illness experiences of men and women with Parkinson’s Disease. We hypothesised that gender norms or stereotypes would be more salient in the experiences of participants with higher GSC scores compared to those with lower GSC scores. IG, LM and PV developed the interview guide, which was discussed with SOP (Supplement 5). The FGDs were performed simultaneously by LM and PV and observed by IG. The interviews were audio-taped and lasted 75-90 minutes. Define (Phase 2): Individual focal points for gender-aware PD care. Participants were individually guided through 3 self-reflective design-based methods to evoke individual insights towards relevant objectives for gender-aware PD care: 1) Reverse Thinking, 2) Word-Concept Association and 3) Download the Learnings.22 The purpose of Reverse Thinking was to prompt ideas about ‘how gender-sensitive care for people with PD would look like if we designed it completely wrong’. The Word-Concept Association was meant to elicit individual associations with gender-specific care for men or women with PD and the Download the Learnings exercise was intended to create a personal description for gender-sensitive PD care and when this becomes most relevant for the individual participant. The duration of this phase lasted 20-25 minutes. Ideate (Phase 3): Formulate key recommendations for gender-sensitive PD care research. The objective of this final design phase was to cumulate the learnings of phase 1 and 2 to formulate recommendations for gender-sensitive PD care. In subgroups of 3-4 people, participants shared their learnings from Phase 2 and were encouraged to
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