Irene Göttgens

Chapter 6 156 listen for common themes and discuss differences. Subsequently, collective insight statements were created, answering the following prompt: “For us, care for men/ women with Parkinson means paying attention to [……] This is especially important when [……]”. Lastly, each group was asked to reflect on recommendation for future research into gender-sensitive care for men and women with PD. Each subgroup was invited to present their collective insights during the plenary closing of the workshop. The duration of this phase lasted 60-75 minutes. Notice and Reflect (Phase 4): Research team and reflexivity. The notice and reflect phases are ongoing and throughout the design and research process. In this study, we operationalised these phases through reflective discussions prior to- and directly after the workshop among the facilitation team (IG, LM, PV). The intention of these phases is to encourage self-awareness and introspection among the facilitation team members about potential biases and assumptions that can influence the research process. For example, the facilitation team was aware that it consisted of 3 female team members and facilitated both the women’s design session and the men’s design session. Furthermore, the preliminary workshop program was discussed with SKLD, neurologist-in-training, to ensure a workshop program, methods and location that were accommodating towards the potential cognitive and physical challenges of people with PD. As a result, we introduced self-reflective exercises in phase 2 of the workshop and included frequent breaks to lower the stress that can be triggering through prolonged cognitive- and interactive group work for people with PD. To accommodate participants with PD related handwriting challenges, we opted for larger papers and digital typing options instead of the typical ‘post-it notes’, which are often used in design sessions. After the workshop, the facilitation team completed an online evaluation reflecting on the workshop program, process and discussed the outcomes with specific focus on principles of inclusive and equity centred design.23 The evaluation questions can be found in Supplement 6. These types of reflections are an integral part of the equity-centred design process and of the ‘notice and reflect’ phase in particular. Data analysis Statistical analysis Pre-workshop surveys Descriptive statistics were performed on the demographic data of the participants, the Hoffman Gender Scale, and the Nijmegen Gender Awareness in Medicine Scale. Differences between men and women in demographic data and the survey scale scores were compared using the Kruskal–Wallis rank sum test or the Fisher exact test. Missing responses were removed during analyses. Data was analysed with the use of R Studio (version 4.1.3).

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