Gender Aware PD Care 159 6 Results Participant Characteristics Overall, 21 men with PD and 18 women with PD registered for the workshops, of which eight men and three women cancelled their participation before or on the day of the workshop. Reasons for cancellations were related to not feeling well enough to travel, not having enough energy to join the workshop or the emergence of other commitments. In total, 28 people participated in the two workshops: one workshop with 13 men and one with 15 women. All participants’ sex assigned at birth was congruent with their gender identity, leading to a study cohort of only cisgender individuals. The median (IQR) age of the participants was 64.2 (7.8) years, and all participants were of Dutch descent. Most participants lived together with a partner or family (96%) and 29% had paid employment. Participants had a median disease duration of 4.9 (2.4) years; notably, with women having a significantly longer median duration (5.9 (2.7) years) compared to men (3.7 (1.4) years) (p = 0.016). Table 1 shows the demographical and clinical characteristics of the study population. Pre-workshop survey results Results of the two single item questions showed that most participants had no previous knowledge or experiences with the topic of ‘gender sensitive care for men and women with PD’ (85%) and had a slightly positive attitude towards the importance of gender sensitivity in PD care (3.8 (0.9) on a 1-5 range). The mean (SD) Gender Self Confidence score of the participants was 4.1 ((1.1) on a 1-6 range), indicating that the degree to which participants met their own standards for masculinity (for men) and femininity (for women) was moderately strong. Participants’ definitions of masculinity or femininity can be found in Supplement 8. Furthermore, participants considered their masculinity or femininity as a moderately strong component of their overall identity (3.9 (1.3) on a 1-6 range). The results of the N-GAMS showed that the attitude of the participants towards gender-related concerns in healthcare was slightly positive (3.8 (0.5) on a 1-5 range), with women having a more positive attitude towards gender-related concern in healthcare (4.1 (0.5) compared to men (3.5 (0.4). Furthermore, participants had a neutral attitude about gender stereotypes towards doctors (2.7 (0.5) on a 1-5 range) and slightly disagreed with gender stereotypes towards patients (2.3 (0.4) on a 1-5 range), with men having a more neutral Gender Role Ideology towards patients (2.5 (0.4)) compared to women (2.2 (0.4)). Two women did not complete the single items question regarding previous knowledge or experiences with the topic and one woman did not complete the N-GAMS. Their responses are not included in pre-workshop survey results presented in table 2.
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