Chapter 6 184 Supplement 5. Interview Guide Focus Group Discussions Domains Topic Gender Identity • Can you talk a little about the perspectives and ideas you grew up with regarding being male/female? How do you view it now as an adult? • What do terms like "masculinity" and "femininity" mean to you? • How would you describe your own gender identity? Is your being male or female an important part of your identity? • Do you consider yourself a 'traditional' man/woman? What does this mean to you? • Are there specific activities that are an important expression of your being male or female? What role does Parkinson's disease play in this for you? Gender Norms and Stereotypes • In your opinion, what is the general perception of men/women with Parkinson's? • In your opinion, are there any stereotypical images or ideas about men/women with Parkinson's? Do you recognize yourself in these images, why/why not? • Are there certain social expectations in your environment that you as a man/ woman should meet according to others? Who are those ‘others’? • How do you deal with these expectations? Does Parkinson's disease play a role in this for you? Is it hindering or helpful? Gender Sensitive Care • What do you think of when you think of "gender sensitive care for people with Parkinson's"? • What do you think of when you think of more sensitive care for men/women with Parkinson's? Supplement 6. Post-Workshop Evaluation Questions for facilitators Post-workshop reflective questions 1 Based on your own observations, (briefly and intuitively) formulate an answer to the primary research question? 2 Based on your own observations, (briefly and intuitively) formulate an answer to the primary design question? 3 Was the focus group method an effective method to explore gender norms in illness experiences of men and women with PD? 4 Optional: Which methods might be (even) more effective to explore gender norms in illness experiences? How might we explore them more effectively (=more informatively)? 5 Was the structured brainstorm an effective method to explore concepts for gender-sensitive care for men and women with PD? 6 Optional: Which methods might be (even) more effective to explore concepts for gendersensitive PD care? How might we explore them more effectively (=more informatively)?
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