Chapter 6 190 Supplement 9. Continued Gender identity category How would ‘gender sensitive care’ for people with Parkinson’s look like if we would design it completely wrong? Women • I expect that wrong medication will be prescribed and there will be many more complaints among women. • More self-neglect, informal care. • Maybe the way it is now? If it does matter it goes wrong (now). If it doesn't matter, it doesn't matter and nothing changes in health care providers. Caregivers probably work more randomly if they are not aware of possible gender influences. • Assuming that care for men with P also applies to women. Not taking into account differences such as hormone changes. No other advice to women in terms of lifestyle, medication, nutrition, in relation to being a woman. Offering male-oriented care to women and assuming that women react the same way to medication etc. Not listening to the specific complaints of the woman. "I don't have an answer" and not being referred for woman specific questions. • Not taking into account the difference between men and women This should not be static, it is not black and white. • Using stereotypes to e.g. approach women only empathetically, to educate men only cognitively. Caregivers know what is good for the patient - don't check in, don't consider grief, communicate from negativity "just enjoy the opportunities you still have". • Women not being "read" properly and therefore receiving less/no proper counselling. Perhaps an anti-neurology movement arises against levodopa or other medications making the "followers" worse off. The relationship "thinking for yourself" is punished -- not good. Women are not taught, actively thinking and feeling -- not good for them. Transition -- important. Changes not being included. • Not listening to the women or man affected, applying male research findings 1-1 to women, no understanding of hormones + Parkinson’s, no consideration of transition/child desire, no attention to female sexuality, treating emotions as female. • Working in health care from stereotypical thoughts. Not questioning complaints and symptoms. Sticking to a non-holistic attitude towards patients (leads to less stereotyping??). I myself was treated by 4 specialties but no one had a total overview except myself. As a result, I tried very hard to put complaints in a broader perspective. Medicine is too much divided into specialties, possibly a disadvantage for the Parkinson's patient -- a Parkinson's specialty. • I assume that this concern can never develop completely wrong. If it did that would be solvable through communication. Caregivers can also learn from others in consultation and conclude from that to work with new methods.
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