Irene Göttgens

The Salience of Gender 81 4 Description Questions that could guide gender-sensitive approaches to care for people with PD Topics that were considered more relevant than gender in illness experiences. When and how does gender become a relevant contextual factor in the individual illness experiences of people with PD? Experiences related to stereotypical views about gender related behaviours, roles, or norms. Which gender-related stereotypical beliefs or attitudes can limit or stimulate effective coping strategies in people with PD? Experiences related to gender differences in the expression and social visibility of PD. How do gendered stigmata related to PD impact social support or access to care? Experiences related to gender differences in dealing with emotions and emotional support When and how do gendered norms related to emotional expression impact coping strategies in people with PD? Experiences related to stereotypical gender traits or behaviours regarding help-seeking behaviours When and how do gendered norms related to help-seeking behaviour impact coping strategies in people with PD? Experiences related to renegotiating stereotypical relations role patterns such as household tasks. How do people with PD and their partners effectively adapt and renegotiate gendered role patterns related to family care and household management? Experiences related to the impact of PD on physical appearance. How do gendered norms related to physical appearance affect illness experiences of people with PD? Professional behaviours that were considered more relevant than gender-related aspects in preferences for healthcare providers. When do gender-related care preferences become relevant for people with PD? Experiences related to preferences for women as care providers and associated stereotypical feminine traits in the context of PD care. What are the drivers behind gender-related care preferences among People with PD? “Interviewer: Now, you have unique comparison material: Are there aspects of living with Parkinson’s disease that you think are specific to you as a man? Interviewee: That’s one to think about for a moment. Living with Parkinson’s disease as a man. I think you might be looked at a bit more pityingly sometimes. Look at that man there shaking. I actually think that’s the only thing I could think of.

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