Thom Bongaerts

110 Chapter 4 experienced a lot of stress, but the relief afterwards, that it turned out to be good, so I did not have cervical cancer, was much more important. Even though I had a few nights of bad sleep, I would definitely always want to know whether I might have cancer.” More than in the other two perspectives these respondents tend to value the opinion of people in their social environment about cancer screening (19,+1), and attending the CSPs was declared to be the social norm (29,-2). “Among my peers everyone participates with the CSPs. Both my parents and closest friends, all do participate in the CSPs. I actually do not know people who have ethical reasons not to participate.” (ID Z2UT). We labelled this perspective “positive about participation”. Ten respondents were statistically significantly associated with this perspective, of whom eight reported they participated in CSPs, one reported not participating, and one did not report participation status. Perspective 2 Respondents with this perspective are more thoughtful about screening participation. Although these respondents also think it is good that CSPs are in place (18,+4) and that they can do something positive for their health by participating (23,+1), they feel there also are disadvantages to participating in screening (13,+2). Contrary to the other perspectives, these respondents prefer not knowing whether they have cancer as long as they do not have any complaints (12,+1; 17,-1), and they also have the lowest expectations that participating in screening will lower their risk of dying of cancer (15,0). At the same time, they are least of all afraid of developing cancer (16,-2), compared to the other two perspectives. As one of the respondents explained (ID 1ZCW): “Without any physical complaints, I do not want to know if a have cancer”. In addition, several respondents mentioned the possibility of a false-positive and/or false-negative test outcome in the answers to the post-ranking questions. These respondents feel they have sufficient information to make a choice on screening participation (5,+3; 3,+2), they trust the testing procedures (28,+2) and do not perceive health (30,-4), religious (20,-3; 21,-3), or other (27,-2; 29,-2; 31,-2; 26,-1) barriers to participation. Distinctive for this perspective is the role these respondents see for their general practitioner (GP) in cancer screening. In case they would have questions about a CSP, they would first of all consult their GP (6,+3) and they also would prefer receiving the outcome of a screening test via the GP (8,+2). One respondent (ID QOIZ) wrote: “The GP is someone I trust and who is able to provide decent advice on medical issues”. We labelled this perspective “thoughtful about participation”. A total of six respondents were statistically associated with this perspective, of whom five reported they participated in CSPs and one reported not participating.

RkJQdWJsaXNoZXIy MTk4NDMw