74 Chapter 3 Patients’ view on their received stoma care The patients were moderately satisfied with their received stoma care. The mean total SSCQ score was 72.4 (± 13.6), which was converted to 6.6 on a scale of 0-10. The SSCQ score of the five ‘time having a stoma’ groups showed no difference. This may be explained by the fact that stoma care has not improved over the years or that recall bias may disguise possible improvements. A total of 40.6% of the patients indicated that they did not need any additional support or care, and 63.8% reported that further improvements were unnecessary. However, additional care was most desired after hospital discharge, and the most frequently reported potential improvements were preoperative information provision (16.9%), stoma site selection (14.1%), information about stoma-related problems (20.3%), and stoma materials (19.4%). Multivariate linear regression analysis showed that the satisfaction score was significantly associated with the patient-related factors: sex, age, and education; the care-related factors: hospital type, stoma permanency, and preoperative unawareness of stoma; and the postoperative factors: quality of life and frequency of psychosocial problems (Table 2). Preoperative awareness, quality of life, and frequency of psychosocial problems mostly influenced satisfaction. Hospital type and stoma permanency did not have a clinically relevant influence. The stratified analysis for time having stoma yielded two additional variables which were not significant in the general regression analysis; patients with an ileostomy had significantly less satisfaction in the group ‘stoma less than 1 year’ and patients with a benign operation indication had significantly less satisfaction in the group ‘stoma 3-5 years’. The other yielded variables differed in significance between the groups and it was notable that the influence of a high education was substantially increased in the group ‘stoma less than 1 year’.
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