99 4 Supporting stoma patients’ self-efficacy with a mobile application - a focus group interview stud have a stoma output of > 900 ml, whereas another nurse defined a high-output stoma as an output of more than 1200 ml. To prevent patients becoming confused about possible contradictions between the information in the app and the information given by their caregivers, participants agreed that the app should contain a statement that patients should always follow the protocol given by their own caregivers. Surgeon 2 (FG3): “Can I go to a festival?’ Those questions I get from younger patients. But there are also 35 years old patients who are sitting home with their three children, so... It is difficult to personalize something so specific, because it will never include every patient.” 3. Contact with fellow patients 3.1 The need for peer contact Patients and their representatives explained that contact with fellow patients is important. Patients can benefit from exchanging their experiences and useful information. To date, patients have experienced difficulties in contacting fellow patients. Some participants mentioned that the threshold to get in contact could be too high, or that patients were not matched according to their personal situation and preferences. One patient reported that he was connected to a 30 years older patient whose interests and experiences did not match with his as a result of their age gap. Patients expressed that contact with fellow patients should be easier, preferably with patients of the same age and interests. Patient 4 (FG4): “If I look at what I wanted back then, I had the desire to talk to someone. Not on a forum, there is sufficient information on the internet. I just wanted to talk to someone who shared the same experience as me, but the threshold was too high.” 3.2 Peer contact in a mobile app Participants expressed that contact with fellow patients facilitated in an app would be helpful. Three types of fellow peer contact in an app were discussed. A forum could be implemented in the app, in which a patient can ask a specific question and all other patients can respond to share their experience or knowledge on this topic. A forum can provide access to opinions and insights of many patients, rather than just one opinion. However, participants suggested that patients have less privacy if specific questions can be read by all other patients, and the representatives of patient associations explained that they already have an online forum on their website and in Facebook groups and recommended using the forum on the existing platforms instead of building it in the app. The possibility of integrating a platform with peer-to-peer contact in the app was discussed, so that patients could interact with others to give or receive advice, or with
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