Tjerk Sleeswijk Visser

28 Chapter 2 discussed and voted upon. Voting at this meeting was anonymous and recorded using specific software (Mentimeter AB, Stockholm, Sweden). The choices at this meeting were only ‘agree’ or ‘disagree’ (with the outcome measurement instrument being part of the COS). An outcome measurement instrument was endorsed if ≥70% agreed. An outcome measurement instrument was provisionally endorsed if 30-70% agreed. An outcome measurement instrument was not endorsed if < 30% agreed. Equity, Diversity, and Inclusion statement The author group consist of a representative sample of men and women and both junior and experienced researchers from a variety of disciplines and from different countries. The panel consists of both patients and professional participants from different countries and with a representative distribution of gender and we strived for a diversity in country of residence. RESULTS We commenced this study in September 2018, with regular meetings by the steering committee to design the study, facilitate data collection and interpretation. The project was completed in November 2023. We contacted 68 professional participants based on the Expertscape search. 35 did not want to participate of did not respond. 33 professional participants were selected to participate in the panel. The characteristics of the professional participants and patients who completed the Delphi surveys and attended the in-person consensus meeting are displayed in Table 1.

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