30 Chapter 2 Survey 1 Survey 2 In-person consensus meeting Characteristic PPs Patients PPs Patients PPs Patients Countries where work Australia 5 3 2 1 4 0 United Kingdom 3 5 2 3 2 0 United States of America 4 0 3 3 2 0 The Netherlands 2 0 4 2 1 0 Sweden 3 1 2 2 1 0 Italy 1 0 2 0 0 0 Canada 1 0 1 0 0 0 Belgium 0 1 0 1 0 0 Spain 0 1 0 0 0 1 Ireland 0 1 0 0 0 0 China 0 0 1 0 0 0 Denmark 0 0 0 0 1 0 † Not further specified. Step 1 – A systematic review on all available outcome measurement instruments In brief, there were 9,376 studies identified and 307 studies were finally included.5 233 different outcome measurement instruments across all domains were identified, and 177 outcome measurement instruments were selected within the predefined core domains – previously reported.7 These outcome measurement instruments were used for the next step in the COS-AT process. Step 2 – Online survey to evaluate Truth and Feasibility of outcome measurement instruments (first round Delphi procedure) The first online survey was sent to the participants at 1st November 2021. 31 participants completed the survey. 12 (39%) participants were patients and 19 were professional participants. In total, 13 (42%) participants were women and 18 (58%) man. 177 different outcome measurement instruments across all core domains were assessed. More than 70% of the participants agreed that 22 (12%) outcome measurement instruments are both truthful and feasible (online supplementary file 2). The full results of the survey are presented in online supplementary file 3.
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