148 52. Fisk JD, Pontefract A, Ritvo PG, Archibald CJ, Murray TJ. The Impact of Fatigue on Patients with Multiple Sclerosis. Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 1994; 21. DOI:10.1017/S0317167100048691. 53. Pepper CM, Krupp LB, Friedberg F, Doscher C, Coyle PK. A comparison of neuropsychiatric characteristics in chronic fatigue syndrome, multiple sclerosis, and major depression. Journal of Neuropsychiatry and Clinical Neurosciences 1993; 5. DOI:10.1176/jnp.5.2.200. 54. Winningham ML, Nail LM, Burke MB, et al. Fatigue and the cancer experience: the state of the knowledge. Oncol Nurs Forum 1994; 21. 55. Hill CL, Baird WO, Walters SJ. Quality of life in children and adolescents with Osteogenesis Imperfecta: A qualitative interview based study. Health Qual Life Outcomes 2014; 12. DOI:10.1186/1477-7525-12-54. 56. Tosi LL, Floor MK, Dollar CM, et al. Assessing disease experience across the life span for individuals with osteogenesis imperfecta: challenges and opportunities for patient-reported outcomes (PROs) measurement: a pilot study. Orphanet J Rare Dis 2019; 14: 23. 57. Arponen H, Waltimo-Sirén J, Valta H, Mäkitie O. Fatigue and disturbances of sleep in patients with osteogenesis imperfecta - A cross-sectional questionnaire study. BMC Musculoskelet Disord 2018. DOI:10.1186/s12891-017-1922-5. 58. Merkies IS, Schmitz PI, Samijn JP, van der Meché FG, van Doorn PA. Fatigue in immune-mediated polyneuropathies. European Inflammatory Neuropathy Cause and Treatment (INCAT) Group. Neurology 1999. 59. Krupp LB, Larocca NG, Muir Nash J, Steinberg AD. The fatigue severity scale: Application to patients with multiple sclerosis and systemic lupus erythematosus. Arch Neurol 1989. DOI:10.1001/archneur.1989.00520460115022. 60. Goligher EC, Pouchot J, Brant R, et al. Minimal clinically important difference for 7 measures of fatigue in patients with systemic lupus erythematosus. Journal of Rheumatology 2008. 61. Pouchot J, Kherani RB, Brant R, et al. Determination of the minimal clinically important difference for seven fatigue measures in rheumatoid arthritis. J Clin Epidemiol 2008. DOI:10.1016/j. jclinepi.2007.08.016. 62. Osoba D, Rodrigues G, Myles J, Zee B, Pater J. Interpreting the significance of changes in health-related quality-of- life scores. Journal of Clinical Oncology 1998; 16. DOI:10.1200/ JCO.1998.16.1.139. 63. Elbatarny M, Mollah S, Grabell J, et al. Normal range of bleeding scores for the ISTH-BAT: Adult and pediatric data from the merging project. Haemophilia 2014; 20: 831–5. 64. Hathaway WE, Solomons CC, Ott JE, Ott E. Platelet Function and Pyrophosphates in Osteogenesis Imperfecta. Blood 1972; 39.
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