45 Chapter 2 27. Bozkurt S, Arabaci LB, Vara S¸, Özen S, Göks¸en D, Darcan S¸. The impactof psycho-educational training on the psychosocial adjustment of caregivers of osteogenesis imperfecta patients. J Clin Res Pediatr Endocrinol. 2014;6(2):84–92. 28. dos Santos MC, Pires AF, Soares K, Barros L. Family experience withosteogenesis imperfecta type 1: the most distressing situations. Disabil Rehabil. 2018;40(19):2281–7. 29. Dogba MJ, Rauch F, Wong T, Ruck J, Glorieux FH, Bedos C. From pediatric to adult care: strategic evaluation of a transition program for patients with osteogenesis imperfecta. BMC Health Serv Res. 2014 Oct 31;14:489. 30. Wilson I, Cleary P. Linking clinical variables with health-related qualityof life. JAMA. 1995;273(1):59–65.
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