100 Chapter 3 Results of the panel(s) # Health outcome Description Patients and caregivers Healthcare professionals 139 Overall concern The extent to which a person is concerned in general × × 140 Concerns about the bleeding disorder A person’s concern about his/her bleeding disorder ≠ ≠ 141 Concerns about financial security A person’s concern about his/her financial security being affected by his/her bleeding disorder ≠ ≠ 142 Attitude towards the future A person’s attitude towards his/her future × × 143 Development of comorbidities longterm The occurrence of other diseases on the long-term × × 144 Deterioration of venous access Deterioration of venous access due to too many infusions at the same site ≠ ≠ 145 Loss of mobility due to prosthesis The loss of mobility due to insufficient alignment of a prosthesis ≠ ≠ 146 Mortality The number of bleeding disorder-related deaths per year × × The panel achieved consensus on importance; × the panel achieved consensus on unimportance; ≠ no consensus was achieved by the panel
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