Shannon van Hoorn

102 Chapter 3 Results of the panel(s) # Health outcome Description Patients and caregivers Healthcare professionals 107 Emotional support The extent to which a person can express his concerns and feelings to others × × 108 Practical support The extent to which a person has access to and accepts help from others, e.g. with the household × × 109 Impact of residency The impact of the bleeding disorder on a person’s residential location ≠ ≠ 110 Impact on emotions The impact of the bleeding disorder on a person’s emotions   111 Impact on sexual health/intimacy The impact of the bleeding disorder on a person’s sexual health and intimacy × × 129 Impact of menstruation of family life The impact of menstrual bleeding on a person’s family life   140 Concerns about the bleeding disorder A person’s concern about his/her bleeding disorder   141 Concerns about financial security A person’s concern about his/her financial security being affected by his/her bleeding disorder × × 144 Deterioration of venous access Deterioration of venous access due to too many infusions at the same site × × 145 Loss of mobility due to prosthesis The loss of mobility due to insufficient alignment of a prosthesis × × 147 Concerns about inheritance of the bleeding disorder † The extent to which a person is concerned about the inheritance of his/her bleeding disorder   148 Concerns about pregnancy/miscarriage/ giving birth † The extent to which a person is concerned about a possible pregnancy/miscarriage or giving birth   149 Visualization of the joints (MRI or X-ray) † The extent to which the joints have been mapped by MRI or X-ray and how long ago this was done × ×

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