107 Patient-relevant health outcomes: A delphi study 3 Results of the panel(s) # Health outcome Description Patients and caregivers Healthcare professionals 125 Impact of menstruation on daily life The impact of menstrual bleeding on a person’s ability to engage in activities of daily living (including social relations, work/school) 127 Impact of menstruation on work/ school absentee-ism The impact of menstrual bleeding on a person’s ability to go to work/school ≠ 128 Impact of menstruation on maintaining social relationships The impact of menstrual bleeding on a person’s ability to maintain social relationships ≠ 129 Impact of menstruation of family life The impact of menstrual bleeding on a person’s family life ≠ 130 Impact of menstruation on the ability to enjoy life The impact of menstrual bleeding on a person’s ability to enjoy life ≠ 131 Impact of menstruation on sleep The impact of menstrual bleeding on a person’s sleep pattern ≠ 132 Self-management with the treatment process The extent to which a person takes responsibility for his/her own behavior and well-being within his/her treatment process × × 134 Perceived disease control A person’s perception about his/her control over the disease × × 135 Self-care The extent to which a person is able to take care of himself/herself × × 136 Ability to maintain basic self-care The extent to which a persons is able to continue to care for himself/herself as he/she gets older × 137 Knowledge about the bleeding disorder A person’s level of knowledge about the possible consequences and risk associated with a bleeding disorder ×
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