119 Harmonizing patient-reported outcome measurements in inherited bleeding disorders with PROMIS 4 Center Utrecht; Leiden University Medical Center; Radboud University Medical Center; Netherlands Society of Hemophilia Patients (NVHP); Netherlands Society for Thrombosis and Hemostasis (NVTH); Bayer B.V., CSL Behring B.V., Swedish Orphan Biovitrum (Belgium) BVBA/SPRL. The Dutch research group for PROMIS implementation in inherited bleeding disorders aims to research the feasibility, reliability and validity of Dutch PROMIS item banks in children and adults with inherited bleeding disorders. We would like to thank our colleagues Marjolein Peters, Michiel Coppens, Hester F. Lingsma, Marieke J.H.A. Kruip, Lize F.D. van Vulpen & Tessa C.M. van Gastel for their contribution to the Dutch research group for PROMIS implementation in inherited bleeding disorders.
RkJQdWJsaXNoZXIy MTk4NDMw