Shannon van Hoorn

146 Chapter 5 18. van der Willik EM, Terwee CB, Bos WJW, et al. Patient-reported outcome measures (PROMs): making sense of individual PROM scores and changes in PROM scores over time. Nephrology. 2021;26(5):391-399. doi:10.1111/nep.13843 19. Bouazza YB, Chiairi I, El Kharbouchi O, et al. Patient-reported outcome measures (PROMs) in the management of lung cancer: A systematic review. Lung Cancer. 2017;113:140-151. doi:10.1016/j.lungcan.2017.09.011 20. Stover AM, Haverman L, van Oers HA, Greenhalgh J, Potter CM, on behalf of the ISOQOL PROMs/PREMs in Clinical Practice Implementation Science Work Group. Using an implementation science approach to implement and evaluate patientreported outcome measures (PROM) initiatives in routine care settings. Qual Life Res. 2021;30(11):3015-3033. doi:10.1007/s11136-020-02564-9 21. van Balen EC, Haverman L, Hassan S, et al. Validation of PROMIS Profile-29 in adults with hemophilia in the Netherlands. J Thromb Haemost. 2021;19(11):26872701. doi:10.1111/jth.15454 22. Kuijlaars IAR, Teela L, van Vulpen LFD, et al. Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevance. Res Pract Thromb Haemost. 2021;5(8):e12621. doi:10.1002/rth2.12621 23. van Hoorn ES, Teela L, Kuijlaars IAR, et al. Harmonizing patient-reported outcome measurements in inherited bleeding disorders with PROMIS. Haemophilia. 2022;29(1):357-361. doi:10.1111/hae.14694 24. Heesterbeek MR, Luijten MAJ, Gouw SC, et al. Measuring anxiety and depression in young adult men with haemophilia using PROMIS. Haemophilia. 2022;28(3):e79e82. doi:10.1111/hae.14534 25. Broderick JE, DeWitt EM, Rothrock N, Crane PK, Forrest CB. Advances in PatientReported Outcomes: The NIH PROMIS((R)) Measures. EGEMS (Wash DC). 2013;1(1):1015. doi:10.13063/2327-9214.1015 26. Terwee CB, Crins MHP, Boers M, de Vet HCW, Roorda LD. Validation of two PROMIS item banks for measuring social participation in the Dutch general population. Qual Life Res. 2019;28(1):211-220. doi:10.1007/s11136-018-1995-0 27. Fries JF, Witter J, Rose M, Cella D, Khanna D, Morgan-DeWitt E. Item response theory, computerized adaptive testing, and PROMIS: assessment of physical function. J Rheumatol. 2014;41(1):153-8. doi:10.3899/jrheum.130813 28. Luijten MAJ, Terwee CB, van Oers HA, et al. Psychometric Properties of the Pediatric Patient-Reported Outcomes Measurement Information System Item Banks in a Dutch Clinical Sample of Children With Juvenile Idiopathic Arthritis. Arthritis Care Res (Hoboken). 2020;72(12):1780-1789. doi:10.1002/acr.24094 29. Riley WT, Pilkonis P, Cella D. Application of the National Institutes of Health Patient-reported Outcome Measurement Information System (PROMIS) to mental health research. J Ment Health Policy Econ. 2011;14(4):201-8. 30. de Wee EM, Mauser-Bunschoten EP, Van Der Bom JG, et al. Health-related quality of life among adult patients with moderate and severe von Willebrand disease. J Thromb Haemost. 2010;8(7):1492-9. doi:10.1111/j.1538-7836.2010.03864.x 31. Teela L, van Muilekom MM, Kooij LH, et al. Clinicians' perspective on the implemented KLIK PROM portal in clinical practice. Qual Life Res. 2021;30(11):32673277. doi:10.1007/s11136-020-02522-5 32. Mokkink LB, Prinsen CAC, Patrick DL, et al. COSMIN Study Design checklist for Patient-reported outcome measurement instruments. Amsterdam, The Netherlands. 2019;

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