Shannon van Hoorn

153 PROMIS in VWD, IPFDs and RBDs 5 Table S4: Overview of the T-scores and standard errors in adults with von Willebrand disease. T-score Standard errors PROMIS measure N Mean SD Min Max Mean SD Min Max CATs Physical function 67 47.2 10.0 19.8 64.7 2.1 0.3 1.5 3.0 Pain interference 67 51.3 9.6 41.0 75.7 2.7 1.2 1.0 4.1 Fatigue 66 50.4 10.8 28.8 78.1 2.1 0.3 1.7 3.2 Anxiety 66 50.2 7.5 36.4 70.5 2.4 0.6 2.0 4.0 Depression 65 49.5 6.9 39.0 66.3 2.5 0.7 1.9 4.1 Ability to participate in social roles and activities 64 53.2 7.8 37.9 64.9 2.2 0.5 1.6 3.4 Satisfaction with social roles and activities 64 50.9 7.0 38.1 65.9 2.0 0.5 1.5 3.4 Short form Anger 63 49.1 8.3 36.3 68.1 3.2 0.4 2.8 4.0 Fixed scale Global Health – physical health 62 39.9 6.6 29.6 57.7 4.2 0.2 4.1 4.9 Global Health – mental health 62 37.2 9.1 21.2 53.3 3.8 0.3 3.6 4.6 Abbreviations: CATs, Computer Adaptive Tests; Max, maximum; Min, minimum; SD, standard deviation.

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