Shannon van Hoorn

162 Chapter 5 Table S13: Number of completed items, floor and ceiling effects, and reliability of the PROMIS measures in adults with rare bleeding disorders. No. of items Floor Ceiling Reliability PROMIS measure N Mean SD Min Max % % Coefficient CATs Physical function 26 6.6 3.0 4 12 0% 4% 0.95 Pain interference 26 7.8 3.9 4 12 38% 0% 0.92 Fatigue 26 6.2 2.7 4 12 4% 0% 0.95 Anxiety 26 9.1 2.4 6 12 15% 0% 0.93 Depression 26 7.9 1.5 5 9 31% 0% 0.91 Ability to participate in social roles and activities 26 6.7 2.8 4 12 0% 12% 0.95 Satisfaction with social roles and activities 26 6.7 3.5 4 12 0% 8% 0.95 Short Form Anger 26 5 - 5 5 19% 0% 0.89 Fixed scale Global Health – physical health 26 4 - 4 4 0% 0% 0.82 Global Health – mental health 26 4 - 4 4 23% 0% 0.85 Abbreviations: CATs, Computer Adaptive Tests; Max, maximum; Min, minimum; No, number; SD, standard deviation.

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