Shannon van Hoorn

168 Chapter 5 Table S19: Overview of the T-scores and standard errors in adults with rare bleeding disorders. T-score Standard errors PROMIS measure N Mean SD Min Max Mean SD Min Max CATs Physical function 26 49.9 9.4 31.1 69.2 2.1 0.5 1.5 3.9 Pain interference 26 51.3 10.3 41.0 74.3 2.6 1.3 0.8 4.1 Fatigue 26 48.4 10.5 28.8 65.4 2.1 0.3 1.9 3.2 Anxiety 26 49.3 7.5 36.4 64.1 2.5 0.7 1.8 4.0 Depression 26 46.5 6.6 39.1 60.7 2.8 0.9 2.0 4.1 Ability to participate in social roles and activities 26 53.0 8.6 34.7 64.9 2.1 0.5 1.6 3.4 Satisfaction with social roles and activities 26 53.7 8.0 37.7 65.9 2.2 0.5 1.5 3.4 Short form Anger 26 46.3 7.0 36.3 58.1 3.3 0.4 2.8 4.0 Fixed scale Global Health – physical health 26 38.4 6.5 26.7 50.8 4.2 0.1 4.1 4.6 Global Health – mental health 26 32.5 9.3 21.2 50.8 3.9 0.4 3.6 4.6 Abbreviations: CATs, Computer Adaptive Tests; Max, maximum; Min, minimum; SD, standard deviation.

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