Shannon van Hoorn

218 Chapter 7 REFERENCES 1. Beny K, du Sartz de Vigneulles B, Carrouel F, et al. Haemophilia in France: Modelisation of the Clinical Pathway for Patients. Int J Environ Res Public Health. 2022;19(2):646. doi:10.3390/ijerph19020646 2. Santagostino E, Dougall A, Jackson M, et al. Comprehensive care of hemophilia. 3rd ed. WFH; 2020. Guidelines for the Management of Hemophilia. 3. Bauer KA. Current challenges in the management of hemophilia. Vol. 21. 2015:S11222. Am J Manag Care. 4. Nogami K, Shima M. Current and future therapies for haemophilia—Beyond factor replacement therapies. Br J Haematol. 2023;200(1):23-34. doi:10.1111/bjh.18379 5. Cnossen MH, van Moort I, Reitsma SH, et al. SYMPHONY consortium: Orchestrating personalized treatment for patients with bleeding disorders. J Thromb Haemost. 2022;20(9):2001-2011. doi:10.1111/jth.15778 6. Hassan S, van Balen EC, Smit C, et al. Health and treatment outcomes of patients with hemophilia in the Netherlands, 1972-2019. J Thromb Haemost. 2021;19(10):2394-2406. doi:10.1111/jth.15424 7. Hermans C, Noone D, Benson G, et al. Hemophilia treatment in 2021: Choosing the ”optimal” treatment using an integrative, patient-oriented approach to shared decision-making between patients and clinicians. Blood Rev. 2022;52:100890. doi:10.1016/j.blre.2021.100890 8. Goedhart TMHJ, Janssen A, Mathôt RAA, Cnossen MH. The road to implementation of pharmacokinetic-guided dosing of factor replacement therapy in hemophilia and allied bleeding disorders. Identifying knowledge gaps by mapping barriers and facilitators. Blood Rev. 2023:101098. doi:10.1016/j.blre.2023.101098 9. Stoffman J, Andersson NG, Branchford B, et al. Common themes and challenges in hemophilia care: a multinational perspective. Hematology. 2019;24(1):39-48. do i:10.1080/10245332.2018.1505225 10. Nederlandse Vereniging van Hemofiliebehandelaars. Richtlijn Diagnosiek en Behandeling van Hemofilie. Nederlandse Vereniging voor Hematologie. Updated 20-12-2022. Accessed January 22nd, 2024. https://publicatie. hematologienederland.nl/richtlijnen/hemofilie/ 11. Bergin RJ, Whitfield K, White V, et al. Optimal care pathways: A national policy to improve quality of cancer care and address inequalities in cancer outcomes. Journal of Cancer Policy. 2020;25:100245. doi:10.1016/j.jcpo.2020.100245 12. Leusder M, van Elten HJ, Ahaus K, Hilders C, van Santbrink EJP. Protocol for improving the costs and outcomes of assistive reproductive technology fertility care pathways: a study using cost measurement and process mining. BMJ Open. 2023;13(6):e067792. doi:10.1136/bmjopen-2022-067792 13. Stiggelbout A, Griffioen I, Brands J, et al. Metro Mapping: development of an innovative methodology to co-design care paths to support shared decision making in oncology. BMJ Evidence-Based Medicine. 2023:1-4. doi:10.1136/bmjebm2022-112168 14. Griffioen I, Melles M, Rietjens J, Van der Kolk M, Snelders D. O.O.9.5 - MetroMapping: Development of a methodology to redesign care paths to support Shared Decision Making: Presenter(s): Anne Stiggelbout, Leiden University Medical Center, Netherlands. Patient Educ Couns. 2023;109:91. doi:10.1016/j.pec.2022.10.213

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