252 Addendum LIST OF PUBLICATIONS This thesis van Hoorn ES, Houwing ME, Al Arashi W, et al. Patient-reported outcomes in autosomal inherited bleeding disorders: A systematic literature review. Haemophilia. 2022;28(2):197-214. doi:10.1111/hae.14492 van Hoorn ES, Lingsma HF, Cnossen MH, Gouw SC, for the SYMPHONY consortium. Patient-relevant health outcomes for von Willebrand disease, platelet function disorders, and rare bleeding disorders: a Delphi study. Research and Practice in Thrombosis and Haemostasis. 2023;7(7):102201. doi:10.1016/j.rpth.2023.102201 van Hoorn ES, Teela L, Kuijlaars IAR, et al. Harmonizing patient-reported outcome measurements in inherited bleeding disorders with PROMIS. Haemophilia. 2022;29(1):357-361. doi:10.1111/hae.14694 van Hoorn ES, Willems SPE, Al Arashi W, et al. Psychometrics of patientreported outcomes measurement information system in von Willebrand disease, inherited platelet function disorders and rare bleeding disorders. Research and Practice in Thrombosis and Haemostasis. 2024;8(4):102474. doi:10.1016/j.rpth.2024.102474 van Hoorn ES, Bassant NY, Lingsma HF, de Vries-Sluijs TE. Patient experiences with value-based healthcare interventions at the HIV outpatient clinic of the Erasmus Medical Centre. PLOS ONE. 2024;19(6):e0304859. doi: 10.1371/journal. pone.0304859 van Hoorn ES, Mussert CMA, Gouw SC, et al. Hemophilia care in the Netherlands: Identification and visualization of the care pathway for young children with hemophilia. (submitted) Other publications Kuijlaars IAR, Teela L, van Vulpen LFD, Timmer MA, Coppens M, Gouw SC, Peters M, Kruip MJHA, Cnossen MH, Muis JJ, van Hoorn ES, Haverman L, Fisher K. Generic PROMIS item banks in adults with hemophilia for patient-reported outcome assessment: Feasibility, measurement properties, and relevance. Research and Practice in Thrombosis and Haemostasis. 2021;5(8):e12621. doi:10.1002/rth2.12621
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