36 Chapter 2 Name of instrument Type Aim Dimensions/ domains Items and scoring Studies (n), references Psychometric qualities* IPAQ Generic To assess the level of community participation Autonomy indoors, autonomy outdoors, family roles, social relationships, paid work and education 39 items rated on a 4-point Likert scale; higher scores indicate greater restriction in participation or greater perception of problems in participation 1 26 ITQOL Generic To assess caregiver’s perceptions of their child’s (ages 0-5) HRQoL Physical functioning, growth and development, bodily pain, temperament and moods, general behavior, getting along, general health perceptions, parental impactemotional, parental impact-time, family cohesion, and change in health 97 items rated on a 4- to 6- point Likert scale; higher scores indicate better HRQoL 1 24 Kids’ ITP Tool Diseasespecific To assess HRQoL in children with ITP No separate domains 26 items on a 6-point Likert scale: higher scores indicate greater impact of disease and poorer quality of life 1 33 The Kids’ ITP Tool is not a valuable outcome measure for children with platelet disorders. The majority of the questions scored “not applicable” or “never/rarely applicable” MPQ Generic To assess the different qualities of the subjective pain experience The sensory, affective and evaluative aspects of pain 20 items rated on a 5-point Likert scale; higher scores indicate higher levels of pain 1 26 SF-36 Generic To assess the physical component and the mental component of HRQoL Physical functioning, role physical, bodily pain, general health, vitality, social functioning, role emotional, and mental health 36 items; higher scores indicate lower levels of disability 7 22, 23, 25, 27, 28, 40, 41
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