60 Chapter 2 SEARCH STRATEGY Embase ('congenital blood clotting disorder'/de OR 'Glanzmann disease'/de OR 'gray platelet syndrome'/de OR 'Scott syndrome'/de OR 'von Willebrand disease'/ de OR 'blood clotting factor 10 deficiency'/de OR 'blood clotting factor 11 deficiency'/de OR 'blood clotting factor 13 deficiency'/de OR 'blood clotting factor 5 deficiency'/de OR 'blood clotting factor 7 deficiency'/de OR 'May Hegglin anomaly'/de OR 'blood clotting factor deficiency'/de OR 'prothrombin deficiency'/de OR (('thrombocyte anomaly'/de OR 'fibrinogen defect'/exp OR 'thrombocyte disorder'/de OR 'blood clotting disorder'/de) AND ('congenital disorder'/de OR 'genetic disorder'/de)) OR 'Wiskott Aldrich syndrome'/de OR 'Bernard Soulier disease'/de OR (((congenit* OR inherited OR heredit* OR rare) NEAR/3 (blood-clotting* OR bleeding* OR coagulation* OR thrombocyt* OR platelet* OR fibrinogen*) NEAR/3 (diseas* OR disorder* OR syndrom* OR defect* OR deficien* OR anomal* OR abnormal* OR dysfunction*)) OR glanzmann* OR thrombasthenia* OR ((grey OR gray) NEAR/3 (platelet* OR thrombocyte*)) OR ((scott OR aldrich) NEAR/3 (syndrome*)) OR ((willebrand* OR vonwillebrand*) NEAR/3 (diseas*)) OR (VWD NOT HPLC-VWD) OR ((factor10 OR factor-X OR factor-11 OR factor-XI OR factor-13 OR factor-XIII OR factor5 OR factor-V OR factor-7 OR factor-VII OR factor-1 OR factor-I OR bloodclotting-factor* OR factor-2 OR factor-II OR prothrombin*) NEAR/3 (deficienc*)) OR dysprothrombinem* OR hypoprothrombinem* OR wiskott-aldrich* OR Bernard-Soulier* OR afibrinogen* OR dysfibrinogen* OR hypofibrinogen* OR ((storage-pool*) NEAR/3 (deficien*)) OR May-Hegglin*):ab,ti,kw) AND ('patientreported outcome'/de OR 'self report'/de OR 'interview'/exp OR 'questionnaire'/ exp OR 'psychometry'/de OR 'psychology'/de OR 'social psychology'/de OR 'child psychology'/de OR 'wellbeing'/exp OR 'quality of life'/exp OR 'quality of life assessment'/exp OR 'social life'/de OR 'social participation'/de OR 'coping behavior'/de OR 'mental health'/de OR 'patient satisfaction'/de OR 'social interaction'/de OR 'social phobia'/de OR 'adaptive behavior'/exp OR 'psychological resilience'/de OR 'stigma'/de OR 'social stigma'/de OR empowerment/de OR 'self concept'/exp OR 'social adaptation'/de OR 'daily life activity'/exp OR 'human relation'/de OR 'physical performance'/de OR 'pain assessment'/exp OR 'depression'/de OR 'depression assessment'/de OR 'sexuality'/de OR 'social behavior'/de OR 'fatigue'/de OR 'mental function'/de OR 'health status'/de OR 'general health status assessment'/de OR 'health status indicator'/de OR 'educational status'/de OR 'employment status'/exp OR 'descriptive research'/de OR 'qualitative research'/de OR 'patient preference'/
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