61 PROMs in autosomal inherited bleeding disorders: A systematic literature review 2 de OR 'anxiety'/de OR 'anxiety assessment'/exp OR 'physical activity'/exp OR 'sexual behavior'/exp OR 'sexuality'/de OR 'locomotion'/exp OR 'absenteeism'/ de OR 'sleep'/exp OR 'self evaluation'/de OR 'perception'/de OR (((patient* OR self* OR child OR parent OR parents OR mother* OR father* OR caregiver* OR care-giver* OR carer OR carers) NEXT/1 (report* OR disclos* OR evaluat* OR perception*)) OR prom OR proms OR PROMIS OR interview* OR questionnaire* OR Psychometr* OR psycholog* OR psychosocial* OR psycho-social* OR wellbeing OR wellbeing OR 'quality of life' OR qol OR hrql OR hrqol OR (social NEAR/3 (impact* OR anxi* OR phobia OR aspect* OR implication*)) OR (mental* NEAR/3 (stress OR distress OR health)) OR (satisf* NEAR/3 (patient* OR self OR child)) OR emotion* OR coping OR ((adapt* OR adjust*) NEAR/3 (behav*)) OR resilien* OR stigma* OR empower* OR (self NEXT/1 (concept* OR efficac* OR esteem OR assessment* OR diagnosis OR observation*)) OR (social* NEAR/3 adaptat*) OR (daily NEAR/3 (life OR living) NEAR/3 activit*) OR ((human OR interperson*) NEAR/3 relation*) OR ((physical OR mental) NEAR/3 (performance* OR functioning*)) OR (pain NEAR/3 (assessment* OR manag* OR inventor* OR scale* OR index*)) OR depression* OR depressive* OR sexuality OR (sexual NEAR/3 (functioning*)) OR (social NEAR/3 (behaviour* OR behavior* OR activit* OR contact*)) OR sociobehavi* OR fatigue* OR tiredness* OR ((health OR educational OR employment OR work) NEAR/3 (status OR state)) OR unemployment* OR ((descriptive OR qualitative) NEAR/3 (research* OR study OR studies)) OR ((patient*) NEAR/3 (preferenc*)) OR anxiety OR ((physical* OR sexual*) NEAR/3 (activ* OR behavior* OR behaviour*)) OR running OR swimming OR cycling OR jogging OR walking OR sexuality or locomotion* OR mobility OR absenteeism* OR ((absence* OR absent* OR timeloss*) NEAR/3 work*) OR sleep* OR somnolen*):ab,ti,kw) NOT ('case report'/de OR 'editorial'/de OR (case-report* OR editorial):ti) NOT ([Conference Abstract]/ lim) AND ([dutch]/lim OR [english]/lim) NOT ((animal/exp OR animal*:de OR nonhuman/de) NOT ('human'/exp)) Medline (Blood Coagulation Disorders, Inherited/ OR Thrombasthenia/ OR Gray Platelet Syndrome/ OR Scott syndrome.rs. OR von Willebrand Diseases/ OR Factor X Deficiency/ OR Factor XI Deficiency/ OR Factor XIII Deficiency/ OR Factor V Deficiency/ OR Factor VII Deficiency/ OR MYH9-Related Disorders.rs. OR Hypoprothrombinemias/ OR ((Fibrinogens, Abnormal/ OR Blood Platelet Disorders/ OR Blood Coagulation Disorders/) AND ("Congenital, Hereditary, and Neonatal Diseases and Abnormalities"/ OR Congenital Abnormalities/ OR Genetic Diseases, Inborn/)) OR Wiskott-Aldrich Syndrome/ OR Bernard-
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