63 PROMs in autosomal inherited bleeding disorders: A systematic literature review 2 mental) ADJ3 (performance* OR functioning*)) OR (pain ADJ3 (assessment* OR manag* OR inventor* OR scale* OR index*)) OR depression* OR depressive* OR sexuality OR (sexual ADJ3 (functioning*)) OR (social ADJ3 (behaviour* OR behavior* OR activit* OR contact*)) OR sociobehavi* OR fatigue* OR tiredness* OR ((health OR educational OR employment OR work) ADJ3 (status OR state)) OR unemployment* OR ((descriptive OR qualitative) ADJ3 (research* OR study OR studies)) OR ((patient*) ADJ3 (preferenc*)) OR anxiety OR ((physical* OR sexual*) ADJ3 (activ* OR behavior* OR behaviour*)) OR running OR swimming OR cycling OR jogging OR walking OR sexuality or locomotion* OR mobility OR absenteeism* OR ((absence* OR absent* OR time-loss*) ADJ3 work*) OR sleep* OR somnolen*).ab,ti,kf.) NOT (Case Reports/ OR Editorial/ OR (case-report* OR editorial).ti.) NOT (news OR congres* OR abstract* OR book* OR chapter* OR dissertation abstract*).pt. AND (dutch.la. OR english.la.) NOT (exp animals/ NOT humans/) Cochrane ((((congenit* OR inherited OR heredit* OR rare) NEAR/3 (blood NEXT clotting* OR bleeding* OR coagulation* OR thrombocyt* OR platelet* OR fibrinogen*) NEAR/3 (diseas* OR disorder* OR syndrom* OR defect* OR deficien* OR anomal* OR abnormal* OR dysfunction*)) OR glanzmann* OR thrombasthenia* OR ((grey OR gray) NEAR/3 (platelet* OR thrombocyte*)) OR ((scott OR aldrich) NEAR/3 (syndrome*)) OR ((willebrand* OR vonwillebrand*) NEAR/3 (diseas*)) OR ((factor NEXT 10 OR factor NEXT X OR factor NEXT 11 OR factor NEXT XI OR factor NEXT 13 OR factor NEXT XIII OR factor NEXT 5 OR factor NEXT V OR factor NEXT 7 OR factor NEXT VII OR factor NEXT 1 OR factor NEXT I OR blood NEXT clotting NEXT factor* OR factor NEXT 2 OR factor NEXT II OR prothrombin*) NEAR/3 (deficienc*)) OR dysprothrombinem* OR hypoprothrombinem* OR wiskott NEXT aldrich* OR Bernard NEXT Soulier* OR afibrinogen* OR dysfibrinogen* OR hypofibrinogen* OR ((storage NEXT pool*) NEAR/3 (deficien*)) OR May NEXT Hegglin*):ab,ti,kw) AND ((((patient* OR self* OR child OR parent OR parents OR mother* OR father* OR caregiver* OR care NEXT giver* OR carer OR carers) NEXT/1 (report* OR disclos* OR evaluat* OR perception*)) OR prom OR proms OR PROMIS OR interview* OR questionnaire* OR Psychometr* OR psycholog* OR psychosocial* OR psycho NEXT social* OR well NEXT being OR wellbeing OR 'quality of life' OR qol OR hrql OR hrqol OR (social NEAR/3 (impact* OR anxi* OR phobia OR aspect* OR implication*)) OR (mental* NEAR/3 (stress OR distress OR health)) OR (satisf* NEAR/3 (patient* OR self OR child)) OR emotion* OR coping OR ((adapt* OR adjust*) NEAR/3 (behav*)) OR resilien* OR stigma* OR empower* OR (self NEXT/1 (concept*
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