Shannon van Hoorn

65 PROMs in autosomal inherited bleeding disorders: A systematic literature review 2 NEAR/2 (activit*)) OR ((human OR interperson*) NEAR/2 (relation*)) OR ((physical OR mental) NEAR/2 (performance* OR functioning*)) OR (pain NEAR/2 (assessment* OR manag* OR inventor* OR scale* OR index*)) OR depression* OR depressive* OR sexuality OR (sexual NEAR/2 (functioning*)) OR (social NEAR/2 (behaviour* OR behavior* OR activit* OR contact*)) OR sociobehavi* OR fatigue* OR tiredness* OR (("health" OR educational OR emploment OR work) NEAR/2 (status OR "state")) OR unemployment* OR ((descriptive OR qualitative) NEAR/2 (research* OR "study" OR "studies")) OR ((patient*) NEAR/2 (preferenc*)) OR anxiety OR ((physical* OR sexual*) NEAR/2 (activ* OR behavior* OR behaviour*)) OR "running" OR "swimming" OR "cycling" OR "jogging" OR "walking" OR sexuality or locomotion* OR mobility OR absenteeism* OR ((absence* OR absent* OR time-loss*) NEAR/2 (work*)) OR sleep* OR somnolen*)) NOT ((animal* OR rat OR rats OR mouse OR mice OR murine OR dog OR dogs OR canine OR cat OR cats OR feline OR rabbit OR cow OR cows OR bovine OR rodent* OR sheep OR ovine OR pig OR swine OR porcine OR veterinar* OR chick* OR zebrafish* OR baboon* OR nonhuman* OR primate* OR cattle* OR goose OR geese OR duck OR macaque* OR avian* OR bird* OR fish*) NOT (human* OR patient* OR women OR woman OR men OR man))) AND DT=(Article OR Review) AND LA=(English OR Dutch) NOT TI=(case-report* OR editorial) Google Scholar congenital| inherited clotting| bleeding | coagulation | thrombocyte | platelet | fibrinogen disease | disorder | syndrome | defect | deficiency | anomaly | abnormal | dysfunction" "self | patient reported | disclosed" | PROM | questionnaire | survey | interview | "quality of life" | QOL

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