78 Chapter 3 Consensus achieved by panel(s) # Health outcomes Definition Patients and caregivers Healthcare professionals Joint health 22 Joint damage The presence of joint damage due to joint bleeding episodes 25 Presence of target joints The presence and number of target joints 26 Alteration in joint functional status The alteration (improvement/deterioration) in joint functional capacity to perform functions of daily living 151 Increase in joint bleeds Has the number of joint bleeds increased in a short period of time? Complications 57 Life-threatening complications The occurrence of complications that threaten a person’s life Menstruation 123 Intensity of menstrual bleeding Number of times a person needs to change their menstrual products per day 122 Duration and frequency of menstrual bleeding The duration and frequency of menstrual bleeding 125 Impact of menstruation on daily life The impact of menstrual bleeding on a person’s ability to engage in activities of daily living (including social relations, work/school) 127 Impact of menstruation of work/ school absentee-ism The impact of menstrual bleeding on a person’s ability to go to work/school 128 Impact of menstruation on maintaining social relationships The impact of menstrual bleeding on a person’s ability to maintain social relationships 129 Impact of menstruation of family life The impact of menstrual bleeding on a person’s family life
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