92 Chapter 3 Results of the panel(s) # Health outcome Description Patients and caregivers Healthcare professionals 40 Frequency of emergency department visits The number of emergency visits due to bleeding disorderrelated events per year × × 41 Frequency of hospital admissions The number of bleeding disorder-related hospital admissions per year × × 42 Frequency of outpatient visits The number of bleeding disorder-related outpatient visits per year ≠ ≠ 43 Surgeries The number of bleeding disorder-related surgeries per year × × 44 Readmissions The number of readmissions per year × × 45 Need for reoperation/ revision The need for bleeding disorder-related reoperation/ revision × × 46 Total length of inpatient stay (days) The total number of bleeding disorder-related inpatient days per year × × 47 Number of days lost (work/school) The total number of days lost from work or school because of bleeding disorder-related hospital visits per year ≠ ≠ 48 Treatment side effect The occurrence of treatment side effects including inhibitor status, allergic reactions × 49 Pain or discomfort induced by treatment Interference of treatment-related pain/discomfort on daily life/activities of daily living × × 50 Allergic/ hypersensitivity reactions Allergic reactions to treatment 51 Inhibitor development The presence of antibodies against factor concentrates and/or platelets × 52 Inhibitor recurrence The repeated development of antibodies against factor concentrates and/or platelets ×
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