95 Patient-relevant health outcomes: A delphi study 3 Results of the panel(s) # Health outcome Description Patients and caregivers Healthcare professionals 76 School functioning The capacity to attend school, to achieve academic results and engage in social relationships by a persons with a bleeding disorder × × 77 Impact on academic achievements The impact of having a bleeding disorder on a person’s academic achievements × × 78 Time lost from work/ school Time lost from work/school attainment due to bleeding disorder-related events × × 79 Physical health A person’s ability to perform the basic actions (i.e. mobility, strength, and endurance) that are essential for maintaining independence and carrying out more complex activities × × 80 Ability to engage in physical activities A person’s ability to engage in physical activities × × 81 Sports participation A person’s ability to participate in sports × × 82 Confidence in ability to participate in sports The confidence of a person in his/her ability to participate in sports × × 83 Influence of fear for bleedings on sports participation The influence of fear with regard to anticipated bleeding episodes on sports participation × 84 Physical functioning A person’s ability to perform physical functions and daily routine activities, such as walking, eating, dressing and undressing × × 85 Changes in functional status The change (improvement/deterioration) in functional capacity to perform daily living functions × × 86 Performing agespecific activities The extent to which a person is able to perform activities typical for his/her age × × 87 Sexual functioning The extent of being able to experience sexual pleasures and satisfaction when desired × ×
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