96 Chapter 3 Results of the panel(s) # Health outcome Description Patients and caregivers Healthcare professionals 88 Fertility The extent to which a person is able to have children ≠ ≠ 89 Emotional functioning The extent to which a person is able to express and regulate his/her emotions × × 90 Mental health The psychological well-being or absence of mental illnesses × × 91 Self-image The way a person looks at himself; the thoughts, ideas and judgements that a person has about himself ≠ ≠ 92 Identification as a patient The extent to which a person identifies him/herself as a patient with a bleeding disorder ≠ ≠ 93 Feeling of normalcy in daily life The extent to which a person feels normal, does not feel like a patient in daily life × × 94 Autonomy The degree of autonomy that a person experiences ≠ ≠ 95 Needle fear The extent to which a person is afraid of needles ≠ ≠ 96 Happiness The extent to which a person feels happy/satisfaction × × 97 Anger The extent to which a person is irritable, frustrated and aggressive × × 98 Frustration The frustration of a person that is directly or indirectly related to having a bleeding disorder × × 99 Sleep The quality and amount of sleep of a person with a bleeding disorder × × 100 Problems due to sleep disorders The problems a person experiences due to a disturbed sleep pattern such as reduced alertness, sleepiness and fatigue × × 101 Fatigue General feeling of being tired ≠ ≠ 102 Ability to participate in social roles and activities A person’s ability to fulfil his/her role in social settings and to maintain meaningful relationships with partners and family ≠ ≠
RkJQdWJsaXNoZXIy MTk4NDMw