99 Patient-relevant health outcomes: A delphi study 3 Results of the panel(s) # Health outcome Description Patients and caregivers Healthcare professionals 128 Impact of menstruation on maintaining social relationships The impact of menstrual bleeding on a person’s ability to maintain social relationships 129 Impact of menstruation of family life The impact of menstrual bleeding on a person’s family life ≠ ≠ 130 Impact of menstruation on the ability to enjoy life The impact of menstrual bleeding on a person’s ability to enjoy life 131 Impact of menstruation on sleep The impact of menstrual bleeding on a person’s sleep pattern 132 Self-management with the treatment process The extent to which a person takes responsibility for his/ her own behavior and well-being within his/her treatment process 133 Self-efficacy A person’s confidence in his/her own ability to successfully manage his/her bleeding disorder × × 134 Perceived disease control A person’s perception about his/her control over the disease 135 Self-care The extent to which a person is able to take care of himself/herself 136 Ability to maintain basic self-care The extent to which a persons is able to continue to care for himself/herself as he/she gets older 137 Knowledge about the bleeding disorder A person’s level of knowledge about the possible consequences and risk associated with a bleeding disorder 138 Support in obtaining and understanding information The support a person experiences in obtaining and understanding information about his/her bleeding disorder
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