222 Chapter 10 SUPPLEMENTARY S1. Interview guide We’ve invited you for this interview because you have undergone a colorectal operation with an anastomosis, after which you developed an anastomotic leak. Therefore, we would like to ask you some questions around this event. Introduction: general questions • Would you please briefly introduce yourselves? When you were diagnosed with colorectal cancer and what kind of operation you got? • Can you tell me something about your experience around your operation? • Where you informed by your health care professional (specialist nurse or medical specialist) about the risk of any complications? Diagnosis • What complains or symptoms did you have after the operation/around the time of the leak, how did you feel? • What did the medical team do to diagnose and confirm your AL? How did you experience this? • What were your feeling or expectations after you heard you developed a leak? Treatment • Did you undergo a re-intervention for the leak? If yes, can you tell me how you’ve experienced this. ͳ Did the treatment went well? Did you still had complains afterwards? ͳ Did the treatment influence your daily life? ͳ What do you feel was the most positive aspect of the treatment? Did you also have any negative experiences? • If applicable: ͳ How did you feel about having a stoma? / How do you feel about having a stoma? ͳ How did you feel about having a drain? / How do you feel about having a drain? Impact • How are you doing now? ͳ Do you still experience anything in relation to the anastomotic leakage or the treatment of it? Do you still have any complains? How do these complains influence your daily life? / Do you feel hindered in daily activities by these symptoms? • Do you feel that your general quality of life has changed due to the anastomotic leak and the treatment this? If so, how do you notice? • To what extent are you happy with how the postoperative phase after the anastomotic leakage went? What are you most disappointed about? And most satisfied? • In the future we want to be able to evaluate the most important outcomes and aspects of anastomotic leakage to get a better understanding of the impact, your wellbeing and health status. Based on your experience what aspects and outcomes would be necessary to discuss with your doctor? ͳ If a participant is going to the hospital after the development of an anastomotic leakage, what are for you the most important items to discuss with your doctor? What is the most important to you? End • Are there any issues that we haven’t discussed that you would like to tell me about? • Do you have any final questions?
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