223 The patient perspective on colorectal anastomotic leaks: A qualitative study S2. Coding tree 1. Experiences in regards to anastomotic leaks a. Participant experience i. Physical experience 1. Symptoms due to AL a. Feeling weak, tired and lethargic b. Being unable to walk or sit down c. Loss of appetite d. Experiencing cold and shaking e. Diarrhoe / High output followed by no output i.c. stoma f. Bloating g. Nausea and (fecal) vomiting h. Abdominal pain i. Feeling of dying i. Not afraid of dying anymore 2. Complications (i.e. physical consequences) a. Fistula b. Persisting herniations c. Persisting incontinence, diarrhea, hardly sleeping d. Anal stricture 3. No complaints anymore ii. Mental experiences 1. Anxiety a. For pain b. For going back to the hospital / seeing a HCP c. For surgery resulting from leak i. Confidence due to prior surgeries ii. (Blinding) optimism c. For recurrence d. For death 2. Acceptance (after some time) a. Disappointment not getting life back as it was b. Informal caregiver experience i. Negative emotional impact (i.e. trauma) 2. Experiences in regards to stoma a. Negative experiences i. Impact on daily life 1. Frequent leakages 2. Dietary limitations ii. Stigma with stoma 1. Body security/normality 2. Prior experiences with family members iii. Emotional impact 1. (Bathroom) anxiety 2. Gaining continence after rejoint b. Positive experiences i. Satisfied with stoma 1. Being able to sport 2. Being able to work 3. Being able to travel 4. Feeling relieved of getting another stoma (knowing what to expect) c. Deliberations on rejoints (linked with negative experiences in regards to stoma) i. Looking back: was it worth it? 10
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