Jasper Faber

This chapter is published as: Faber, J. S., Poot, C. C., Dekkers, T., Romero Herrera, N., Chavannes, N. H., Meijer, E., & Visch, V. T. (2023). Developing a Digital Medication Adherence Intervention for and with Patients with Asthma and Low Health Literacy: Protocol for a Participatory Design Approach. JMIR Formative Research, 7. doi: 10.2196/35112. All research data and code supporting the findings described in this chapter are available in 4TU. Centre for Research Data at 10.4121/bf21a04c-8c4b-4f51-85b0-0a6387f3a1e1 CHAPTER 3 Participatory design for and with patients with low health literac The previous chapter highlighted the crucial need to accommodate to diverse needs when designing eHealth interventions for individuals with a low socioeconomic position (SEP). However, professionals often face challenges in effectively involving these groups in design processes, a crucial step to align interventions with the needs of the intended target group. The research described in this chapter explored the value of participatory design in facilitating participation of people with a low SEP in bottom-up participatory research. We present a case study where participatory design methods were specifically applied to develop an eHealth intervention: a smart inhaler to improve medication adherence among asthma patients. This study paid particular attention to individuals with low health literacy, a characteristic often associated with a low SEP, which can be a significant barrier to participation in research and design processes. We focused on three participatory design methods: co-constructing stories, experience prototype exhibition, and video prototype evaluation. The chapter presents the potential and implications of these methods in effectively engaging and designing for and with the target group.

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