Maud Hevink

| 131 5 46. Kellogg P, Nogi A. Mind mapping: Using visual thinking to improve patient care and quality of life. Journal of Humanities in Rehabilitation. 2018. 47. Morgan D. Focus Groups as Qualitative Research. Thousand Oaks, California1997. Available from: https://methods.sagepub.com/book/focus-groups-as-qualitative-research. 48. Phillipson L, Towers A-M, Caiels J, Smith L. Supporting the involvement of older adults with complex needs in evaluation of outcomes in long-term care at home programmes. Health Expectations. 2022;25(4):1453-63. 49. Bartlett R, Milne R, Croucher R. Strategies to improve recruitment of people with dementia to research studies. Dementia (London). 2019;18(7-8):2494-504. 50. Wang G, Marradi C, Albayrak A, van der Cammen TJM. Co-designing with people with dementia: A scoping review of involving people with dementia in design research. Maturitas. 2019;127:55-63. 51. Bamford C, Bruce E. Successes and challenges in using focus groups with older people with dementia. The perspectives of people with dementia: Research methods and motivations. 2002:139-64. 52. Smith L, Chesher I, Fredriksen-Goldsen K, Ward R, Phillipson L, Newman CE, et al. Investigating the lived experience of LGBT+ people with dementia and their care partners: a scoping review. Ageing and Society. 2024;44(4):843-66. 53. Guerra SR, Rodrigues SP, Demain S, Figueiredo DM, Sousa LX. Evaluating proFamilies-dementia: Adopting photovoice to capture clinical significance. Dementia. 2013;12(5):569-87. 54. Wiersma EC. Using Photovoice with people with early-stage Alzheimer’s disease: A discussion of methodology. Dementia. 2011;10(2):203-16. 55. Wang C, Burris MA. Photovoice: Concept, Methodology, and Use for Participatory Needs Assessment. Health Education & Behavior. 1997;24(3):369-87. 56. Lloyd V, Gatherer A, Kalsy S. Conducting Qualitative Interview Research With People With Expressive Language Difficulties. Qualitative Health Research. 2006;16(10):1386-404. 57. Ready RE, Ott BR. Quality of Life measures for dementia. Health and Quality of Life Outcomes. 2003;1(1):11. 58. Gill P, Stewart K, Treasure E, Chadwick B. Methods of data collection in qualitative research: interviews and focus groups. British Dental Journal. 2008;204(6):291-5. 59. Sharma RK, Teng A, Asirot MG, Taylor JO, Borson S, Turner AM. Challenges and opportunities in conducting research with older adults with dementia during COVID-19 and beyond. Journal of the American Geriatrics Society. 2022;70(5):1306-13. 60. Jeon Y-H, Shin M, Smith A, Beattie E, Brodaty H, Frost D, et al. Early Implementation and Evaluation of StepUp for Dementia Research: An Australia-Wide Dementia Research Participation and Public Engagement Platform. International Journal of Environmental Research and Public Health. 2021;18(21):11353. 61. Bamford C, Wheatley A, Brunskill G, Booi L, Allan L, Banerjee S, et al. Key components of postdiagnostic support for people with dementia and their carers: A qualitative study. PLoS One. 2021;16(12):e0260506.

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