Daan Hulsmans

82 Chapter 4 Figure 2 An example weekly graphical overview of one participant’s diary entries that was sent to the care professional 2.5 Follow-up interview After the 60-day diary period, a follow-up interview was administered via video call, in which the participant reflected on the acceptability of the daily diary method. The interviews took approximately 20minutes and were structured—each participant was asked the same set of questions in the same order. They were administered by either a researcher or an independent scientist-practitioner who was briefed and trained in the interview protocol. The questions were a mix of openended questions and questions for which a rating-scale was offered. Participants rated their general opinion about adhering to the daily diary protocol on a 5-point Likert-scale ranging from ‘Very pleasant’ to ‘Very unpleasant’. Participants used a 6-point Likert scale ranging from ‘Never’ to ‘More than once per week’ to indicate the frequency of reminders that caretakers gave them to complete their diaries and the frequency with which they discussed their diary entries with their care professional. Furthermore, they reflected on the length and frequency of the 60-day protocol with one survey per day, by indicating whether it was ‘fine for them’, ‘too long/too many’, ‘too short/too few’. Open-ended questions related to reflecting on reasons for participating in the study, reasons for dropping out (if applicable), perceived gains and drawbacks from participating, perceived duration of completing a daily diary (on average), reasons for not completing diaries on certain days and what might have improved their compliance (if applicable).

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